Blogs
Here you will find tips, opinions, and info on different topics
Blogs and Stories
Stories
True accounts from real people, giving you a glimpse into their lives and experiences
Waiting for an epilepsy diagnosis
Had a seizure and waiting for answers? An epilepsy specialist nurse shares what to know about staying safe, school, activities and what happens next.
We live our life around epilepsy, but it does not define us
Katie shares how she fought for answers, found support, and helps son Gus live life to the full despite daily seizures and epilepsy challenges.
Every mile is for Henry
After Henry was diagnosed with a rare form of childhood epilepsy, mum Georgia is walking 100 miles to raise awareness and help families feel less alone.
From diagnosis to Purple Day: Our school community for epilepsy awareness
Discover how a Cumbria primary school used Purple Day to raise epilepsy awareness, helping pupils learn, show support and feel included.
Piece by piece
Read Dian’s story of living with epilepsy and how he rebuilt confidence, focus and independence one step at a time.
Why health professionals recommend Young Epilepsy to families
A paediatric neurology nurse explains how Young Epilepsy supports children, young people and families beyond clinic appointments.
I had to let go of the future I'd planned
When epilepsy changed her dream of a career in musical theatre, Amaya found new strength, support and a different path forward.
"You're always on alert": Lucy and Penny’s story
Lucy shares how epilepsy affects her family and why she worked with Young Epilepsy and SHMA to help young people build confidence and explore their future careers.
Why I walked 100 miles before brain surgery
Read how Lev walked 100 miles for Young Epilepsy before brain surgery, raising over £10,000 and finding focus during a difficult time.
What nobody tells you about moving to adult epilepsy care
Moving from children’s to adult epilepsy care can feel confusing and overwhelming. Read real experiences, what the research shows, and what could make transition better for young people with epilepsy.