Blogs
Here you will find tips, opinions, and info on different topics
Blogs and Stories
Stories
True accounts from real people, giving you a glimpse into their lives and experiences
Fear, Hope and Strength: Our Journey with Lilly’s Epilepsy
Lilly is four and lives with complex epilepsy. Read her family’s story and see how your support helps children like Lily feel safer, supported and hopeful.
Fiona & Elijah: Autism, Epilepsy, and Hope
Fiona shares life with Elijah, a non-verbal autistic child living with epilepsy—navigating seizures, medication struggles, and hope for better understanding.
I’ve found purpose through my pain
Emma-Louise turned trauma from epilepsy, bullying and loss into hope—writing a book to support others and raise awareness through Jo’s story.
Voices in Purple: How Tate turned Purple Day into something bigger
A 9-year-old fundraiser shows how Purple Day, 26 Miles in 26 Days, and one school going purple can help children with epilepsy feel seen.
Why purple? The story behind the colour of epilepsy awareness
Find out why purple is used for epilepsy awareness, what Purple Day is, and how wearing purple helps people feel seen, supported and hopeful together.
Workplace guide to celebrating Purple Day
Purple Day helps workplaces raise epilepsy awareness, support children and families, and start important conversations about inclusion and wellbeing.
I spotted the signs - and spoke up
Discover 12-year-old Lucy and her mum's journey with epilepsy, and how Lucy's experience helped her recognise the symptoms of a seizure in a classmate.
Lights, Camera, Misconception
Hollywood often misrepresents seizures, fuelling myths about epilepsy. Discover what films get wrong and why accurate portrayal matters.
Protecting my dignity during seizures – What I want schools to know
Paige shares how dignity, understanding and quick, calm support during seizures helped her feel safe and included, and what every school needs to get right.
I want to be the advocate I never had
Having epilepsy since infancy, Emma is now seven years seizure-free and a dedicated advocate for young people who lack community.