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The latest figures from the Royal College of Paediatrics and Child Health (RCPCH) show that some areas of epilepsy care for children are improving, but access to services still varies greatly.
Featured
The overwhelming response to our recent petition calling for governments to ensure every child with epilepsy has a current Independent Healthcare Plan (IHP) in school has shown just how critical this issue is.
Topiramate, also known by the brand name Topamax, is an anti-seizure medication. Doctors should no longer prescribe topiramate to treat epilepsy during pregnancy unless there is no suitable alternative treatment. Girls and women whose periods have started will need to take steps to avoid pregnancy if they take topiramate.
Many children living with epilepsy love the thrill of sports but people can often restrict them based on the perception they can’t take part. Here’s how schools can enable young people with epilepsy to participate just as fully as other students based on suggestions provided by our audience.
As we celebrate Pride Month, we're taking this opportunity to reflect on our journey towards creating a more inclusive and welcoming environment for everyone at Young Epilepsy. We believe that promoting a culture of diversity and inclusion within our organisation is essential. By doing so, we are better equipped to support our beneficiaries in a way that respects and celebrates their individuality.
Meet Cash, a 10-year-old with epilepsy who faces focal seizures. Despite the challenges, Cash loves surfing, skateboarding, paddleboarding, and football. Let's support kids like Cash by raising awareness and ensuring inclusion in all activities.
Join us in commemorating Father's Day as we share the touching story of Mark and his son Cayden, highlighting their inspiring bond.
Schools support learning, but how can they help the 103,600 children and young people in the UK with epilepsy? We asked our audience for ways to help young people with epilepsy thrive in school. Here's what they shared with us.
Here at Young Epilepsy, we're always striving to enhance the lives of children and young people living with epilepsy. In 2022, we embarked on a national qualitative research project to gain deeper insights into how families manage epilepsy-related information. The findings were encouraging. Every family had their unique methods, but what they lacked was a centralised, secure platform to streamline their epilepsy health data.
Mum of three, Kelly has more experience than most of supporting children with epilepsy as both her son Cash, 11, and daughter Darla, 9, have been diagnosed with focal epilepsy.
