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The latest figures from the Royal College of Paediatrics and Child Health (RCPCH) show that some areas of epilepsy care for children are improving, but access to services still varies greatly.
Featured
The overwhelming response to our recent petition calling for governments to ensure every child with epilepsy has a current Independent Healthcare Plan (IHP) in school has shown just how critical this issue is.
We’re teaming up with Geek Retreat to create an inclusive gaming space for young people with epilepsy.
A special shout out to the incredible Fliss who completed the 26 miles in 26 days challenge as part of our Purple Day celebrations. Fliss was our top fundraiser for the challenge, raising £1,200. Read her story here.
SUDEP Action and Cornwall Partnership NHS Foundation Trust are collaborating with Young Epilepsy to create a paediatric version of the SUDEP and Seizure Safety Checklist. The award-winning Checklist, which launched in 2015, supports health professionals in discussing epilepsy mortality risks and SUDEP (Sudden Unexpected Death in Epilepsy) with their patients (aged 16+).
Young Epilepsy is joining with other organisations from the epilepsy community to call for a review of proposals that could have an impact on access to the anti-seizure medication valproate.
Epilepsy Medications in Pregnancy Survey Report
We found worrying disparities across the UK in school policies and support for young people living with epilepsy after over 1,000 families from across the country responded anonymously to our survey about the support they received at school during the 2021/22 academic year.
The medicines regulator (MHRA) has announced further changes to prescribing the epilepsy medication valproate which are due to be introduced over the coming months.
Young Epilepsy is one of several epilepsy charities that has been targeted on Twitter by individuals posting flashing images in an attempt to induce seizures. Epilepsy Society have led the ‘Zach’s Law’ campaign for greater protection online for people with epilepsy. The campaign was named after one of their young supporters who was targeted on social media.
If you are a woman or girl with epilepsy - or their parent - we would like to hear from you.
NHS to offer new laser surgery for focal epilepsy NHS England has announced it will offer a new type of laser treatment for children and adults with uncontrolled focal seizures.
