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Eight years waiting for change
Young Epilepsy calls on the Prime Minister to protect access to cannabis-based medicines and improve NHS treatment for young people with severe epilepsy.
News
Keep up with the latest news from Young Epilepsy and stay informed about stories, campaigns, and changes that could impact you and your family.
Showcasing Young Epilepsy research around the world
Young Epilepsy researchers shared pioneering epilepsy research at the European Epilepsy Congress, helping shape future diagnosis, treatment and care.
Young Epilepsy backs call for stronger safeguards around AI health information
Young Epilepsy supports calls for stronger safeguards on AI-generated health information, helping families access trusted, evidence-based advice.
Children with complex epilepsy still missing out on specialist care
New Epilepsy12 findings show fewer than half of children with complex epilepsy access specialist care within a year, despite little progress over six years.
New research finds higher rates of autism among children with epilepsy
A new study explores the link between epilepsy and autism in children, highlighting the need for early diagnosis, support and understanding for young people and families.
Updated PACEPrime Research Study Materials Released
New PACEPrime research materials explain how epilepsy may affect physical activity in children aged 6–10, with clearer guidance for families to take part.
Epilepsy12 Report
Discover the latest findings from the Royal College of Paediatrics and Child Health on improvements to care and support for young people with epilepsy.
Partners for Digital Health Innovation
Tiny Medical Apps and Young Epilepsy have partnered to revolutionise epilepsy care with innovative digital solutions. As part of the SBRI Healthcare Epilepsy Phase 2 project, this collaboration aims to empower young people with epilepsy, improve self-management, and enhance their quality of life. Supported by the Accelerated Access Collaborative (AAC) and the Health Innovation Network, this initiative marks a significant step towards implementing digital health innovations within the NHS.
New report shows uneven advances in children’s epilepsy care
The latest figures from the Royal College of Paediatrics and Child Health (RCPCH) show that some areas of epilepsy care for children are improving, but access to services still varies greatly.
New topiramate safety measures and pregnancy
Topiramate, also known by the brand name Topamax, is an anti-seizure medication. Doctors should no longer prescribe topiramate to treat epilepsy during pregnancy unless there is no suitable alternative treatment. Girls and women whose periods have started will need to take steps to avoid pregnancy if they take topiramate.