When Osiris was around one year old, he was first diagnosed with febrile convulsions. The doctors assured his family that he would outgrow it, but when he turned five, his seizures changed. His family noticed something unusual; he would sometimes freeze, staring off into the distance for several seconds. At first, these moments seemed like harmless daydreams, but as they became more frequent, his parents knew something wasn’t right. Feeling concerned, they sought answers.
After multiple doctor visits and medical tests, Osiris was diagnosed with epilepsy. For his family, it was a moment of shock and uncertainty. The idea of their young son experiencing seizures was frightening, and they had so many questions. How would this affect his life? How would they cope as a family?
With his initial diagnosis, we did not know how to handle it because in-depth information was not forth coming properly from doctors. As a family, we were left to gather information and resources for ourselves to understand what was going on with Osiris.Osiris' mum, Georgiana
It was at this time that Osiris' family connected with Young Epilepsy.
We reached out to Young Epilepsy and they have been truly a safe haven for Osiris and us as a family. We have the right support, information, and they are always available when we need them.
Through the charity, they were able to access vital information and resources that helped them understand the condition. They learned that epilepsy is different for every child, and with the right support, Osiris could live a fulfilling life. Young Epilepsy provided them with the tools they needed to support Osiris' health, well-being, and development.
Now 14 years old, Osiris is thriving. His seizures are under better control, and he’s an active, happy child who loves playing with his friends and exploring new interests. With the support of his medical team and the guidance from Young Epilepsy, his family feels confident about his future. They’ve learned that while epilepsy is part of Osiris' life, it doesn’t define him.
As we approach Christmas, Osiris' story highlights the importance of getting the right support for children and young people diagnosed with epilepsy. Early diagnosis, combined with accessible resources and a strong support network, makes all the difference in helping families navigate the challenges they face.
This Christmas, we’re asking for your support
Help us ensure that more families like Osiris’ receive the help they need. Your contribution to Young Epilepsy will provide critical services, information, and hope to those newly diagnosed, so that no child faces epilepsy alone.
Together, we can make a lasting impact and help young people like Osiris lead bright, empowered lives.
This Christmas, give the gift of hope to families when they need it most
