Blogs and Stories

Read Madeleine's story of living with Jeavons syndrome, a rare epilepsy that causes daily seizures, and the strength that shines beyond them.

• Story
• Diagnosis and treatment
• Health & Research

Can you enjoy fireworks with epilepsy? Learn about seizure triggers and simple ways young people with epilepsy can enjoy Bonfire Night safely.

• Blog
• Living with epilepsy
• Social Life

When seizures never stop: one family's experience of drug-resistant epilepsy, daily challenges and the fight to access cannabis-based treatment.

• Story
• Diagnosis and treatment
• Support
• together we create possible
• Understand my epilepsy

Had a seizure and waiting for answers? An epilepsy specialist nurse shares what to know about staying safe, school, activities and what happens next.

• Blog
• Diagnosis and treatment

Katie shares how she fought for answers, found support, and helps son Gus live life to the full despite daily seizures and epilepsy challenges.

• Story
• Diagnosis and treatment
• Living with epilepsy

After Henry was diagnosed with a rare form of childhood epilepsy, mum Georgia is walking 100 miles to raise awareness and help families feel less alone.

• Story
• Diagnosis and treatment
• together we create possible

Discover how a Cumbria primary school used Purple Day to raise epilepsy awareness, helping pupils learn, show support and feel included.

• Story
• Education & Play
• together we create possible

Read Dian’s story of living with epilepsy and how he rebuilt confidence, focus and independence one step at a time.

• Story
• Education & Play

A paediatric neurology nurse explains how Young Epilepsy supports children, young people and families beyond clinic appointments.

• Blog
• Health & Research

When epilepsy changed her dream of a career in musical theatre, Amaya found new strength, support and a different path forward.

• Story
• Diagnosis and treatment
• Work and Employability