Blogs
Here you will find tips, opinions, and info on different topics
Blogs and Stories
Stories
True accounts from real people, giving you a glimpse into their lives and experiences
Where your money went: The impact of the Christmas Appeal 2024
Your Christmas donations in 2024 raised £60,000 to create vital resources so no child faces an epilepsy diagnosis alone. Thank you for making this possible.
5 top tips to help your child during testing for an epilepsy diagnosis
Get practical advice on supporting your child through epilepsy testing. Learn how to be honest, use age-appropriate language, incorporate play, research hospital resources, and plan a reward. Make the experience less stressful for both of you.
Diagnosis, Doubt, and Determination: Lexi’s Story
Lexi’s epilepsy journey: from missed signs to diagnosis, challenges at school, and family resilience. Learn how support can make a difference - read her story!
Don't be afraid - give your child a voice
Lisa thought she was losing her son Xavier when she witnessed his first seizure. Since then, her family has overcome challenges and is looking to the future.
Why Speaking Up Matters: Bethany’s Fight Against Stigma
Discover Bethany's inspiring story overcoming stigma at school and finding community with Young Epilepsy.
New seizure films
Watch new seizure films from young people living with epilepsy, great for professionals to learn how to support epilepsy in clinics, classrooms and care.
The making of: You can help films
Find out how the new seizure films were made with young people at the heart - what they want you to understand about their seizure type and how you can help.
Atonic seizures
Read about what atonic seizures really feel like, with honest stories from young people, families, and the UK epilepsy community. Share your own experience!
Tonic-clonic seizures
Read about real experiences of tonic seizures from young people and families. Learn what they feel like and how to support someone through them.
Absence seizures
Discover real experiences of absence seizures from young people and families. Learn what they feel like and how to support someone through them.