The path following an epilepsy diagnosis can feel overwhelming for both the child and their family. Meadow’s story is a powerful reflection of her determination and strength, and also highlights the vital role that community and support play in making this journey less isolating.
As Young Epilepsy’s Christmas appeal sheds light on the needs of young people living with epilepsy, Meadow’s experience reminds us how important it is to provide the right information, resources, and community for those facing this life-changing condition.
Meadow's Diagnosis Journey
Meadow was just 10 years old when she first noticed strange symptoms—sudden bursts of emotion, confusion, and the unsettling feeling that the floor was shifting beneath her feet. Initially, her mother Louise dismissed these occurrences as odd but harmless, until the day Meadow experienced a severe seizure.
What followed was a frustrating journey. Many medical professionals misdiagnosed Meadow’s symptoms as panic attacks, leaving the family searching for answers. "I wasn’t imagining things," Meadow reflects. "I knew something was wrong, but no one seemed to believe me."
It wasn’t until they met Dr Mushabe, a specialist in seizures, that they finally received the clarity they needed.
Dr Mushabe truly listened to us. She diagnosed Meadow with complex epilepsy and immediately set up a plan to provide the support she needed.Meadow's mum, Louise
Finding Community
The diagnosis was only the start of Meadow and Louise’s journey. Together, they faced challenges in school, misconceptions from peers, and the emotional toll of managing epilepsy. "I lost so many friends because they didn’t know how to react after I had a seizure," Meadow recalls. "It was really lonely."
It was during this time that they discovered Young Epilepsy.
They connected us with other families going through similar experiences. Suddenly, we didn’t feel so alone. Meadow even found a friend, Katie, who also has epilepsy. They’ve become each other’s source of strength.Meadow's mum, Louise
Looking Ahead
Despite the obstacles, Meadow has shown incredible courage. She has faced setbacks, including the side effects of her medication impacting her GCSEs, but she remains determined to not let epilepsy define her. "I want to become a dance teacher one day," she shares. "I want to show other kids with epilepsy that they can still chase their dreams."
While Meadow’s journey has had its challenges, with the unwavering support of her family, medical team, and Young Epilepsy, she’s found the courage to look forward with hope.
Young people like Meadow need your help
Meadow’s story illustrates the importance of support and community for young people living with epilepsy. By contributing to Young Epilepsy’s Christmas appeal, you can help ensure more families like Meadow’s have access to the resources and connections they need to thrive.
Your donation can help children with epilepsy pursue their dreams, find joy, and feel supported throughout their journey, just as Meadow has.
This Christmas, give the gift of hope to families when they need it most
