Thanks to the incredible support received from fundraising in the last year, our youth support service is there for even more children and young people with epilepsy.
Our Christmas campaign in 2023 highlighted the need to support families living in disadvantaged communities. Children and young people living in areas of deprivation are disproportionately affected by epilepsy. They can struggle to get the support they need.
There's still work to be done, but huge steps have been made to overcome this.
More Young People Receive the Support They Need
This year, we’ve expanded our support to reach more young people. We’ve hosted several events across England, including our first-ever in the North-West, connecting epilepsy professionals and families. By broadening our reach, we’re ensuring more young people with epilepsy have access to the support they need.
I was so happy that you were coming to the North as we have had so little support historically. I wanted my daughter to meet your team and meet people with epilepsy who are really positive about life to make her feel more independent and energised.Parent
Ensuring Young People Can Have Their Voices Heard and Actively Participate
Every young person, regardless of their circumstances, deserves to be heard and have access to the support they need. For those in deprived areas, connecting with peers who understand their challenges is crucial.
Young Epilepsy Virtual Youth Club
Our virtual youth club is for young people with epilepsy aged 10+. These monthly sessions help to build self-esteem, confidence, and well-being in a safe and welcoming space.
It’s been a huge success, with over 170 attendees from across the UK since we launched it this time last year. 10% of those who have attended live in the most deprived areas of England, as defined by the National Index of Multiple Deprivation.
Hearing my daughter laugh with other children with epilepsy. To know she isn’t alone, to share her feelings was amazing.Parent
The Youth Voice Network Representing Young People from All Communities
Our Youth Voice Network, now over 180 members strong, exists to ensure young people living with epilepsy have a platform where their voices truly matter. 9% of the Youth Voice Network are from the most deprived 20% of the national population, and we’re aiming to expand this further.
Members of the Youth Voice Network are empowered to share their stories and shape the future, knowing their perspectives are valued and vital.
We know financial barriers shouldn’t stand in the way of participation. That’s why we provide vouchers and cover travel, food, and drink costs, so these young people can engage without worry.
Together, we’re building a community where every voice has the power to make a difference.
