Rachel’s diagnosis journey
Follow Rachel’s journey from epilepsy diagnosis to finding support and understanding, sharing her insights and resilience along the way.
News and blogs
Daisie's Journey: Navigating the Challenges of Epilepsy
Follow Daisie's rare epilepsy journey & how her family copes. Learn about STXBP1 gene, challenges, and Purple Day's impact. Join us in supporting kids like Daisie!
Bodhi's Triumph: A year of progress, resilience, and hope
From the heartache of 20 seizures a day to the triumph of taking those first steps. Bodhi's journey is a reminder that with support, anything is possible..
I am me, not my Autism
Livvy was diagnosed with Autism just after her 18th birthday. In her blog she discusses how she always 'felt different' and calls for greater understanding towards autism.
My journey with Ketogenic Diet Therapy
Explore a personal journey with ketogenic diet therapy for epilepsy, highlighting the challenges, adjustments, and positive impacts on health.
Emma's Diagnosis: Facing epilepsy and finding support
Read Emma's story of being diagnosed with epilepsy, her emotional journey, and the support she found along the way to manage her condition.
5 things I wish I’d known about epilepsy diagnosis
A personal story by Alice, telling 5 things she wishes she had known when she was diagnosed with epilepsy.
Understanding epilepsy and medication toxicity
Learn about the impact of medication toxicity in epilepsy, including signs, symptoms, and ways to manage treatment safely.
How we support transitioning to Adult Care
Roald Dahl nurses Liz and Bex discuss helping young epilepsy patients transition from pediatric to adult healthcare with guidance and personalized support.
Rosie’s epilepsy diagnosis journey
Explore Rosie’s story of her epilepsy diagnosis, detailing her experiences, challenges, and insights on adjusting to life with epilepsy.