2 young people on a dancemat

Going out tips

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Keeping your meds when you’re clubbing

You might be the first to tell security you have medication - but be upfront about it. Most door staff are trained to keep you safe, and since some anti-seizure meds, like Buccal midazolam, are controlled substances, only you can legally carry them. Contact the club in advance so the staff knows you're bringing medication. If that's not possible, many clubs have medics or medical rooms where you can take your meds or rest. Just ask any staff member. 

Keep your medication in its original packaging with a prescription sticker, and it may need to be registered with on-site medics. Informing staff about your meds can educate them and ensure you get the support you need.

Seizures can be subtle and mistaken for intoxication, so carrying medical ID and making staff aware of your condition increases the chances of getting proper help. Medical professionals can then respond appropriately instead of assuming you're drunk or on drugs.

Remember, knowing your body is your superpower.

medical bracelet

Have you ever thought about wearing a medical ID bracelet?

You have your close friends. The people you spend most of your time with. They all know about your epilepsy, but what about the ones that don’t? You can’t tell everyone on the dance floor, behind the bar or your driver. And neither should you have to – but you can open your circle of trust. Have you considered wearing medical ID jewelry? Just in case of an emergency?  These can still be subtle ways to keep you safe.

Your friends can help you have the best night ever if they know what your limits are. Make sure you’re with people you trust who know what to do if you feel ill…and who you can tell if you’re calling it a night – don’t just grab an Uber and disappear.

Venue research

Photosensitive epilepsy affects less than 3% of young people with epilepsy. But if you have photosensitive epilepsy, you’ll know that flashing lights or strobe lights may trigger a seizure. This doesn’t mean you can’t go clubbing or to a live gig, it just means you need to check with the venues what lighting they use and if there’ll be flashing lights. Everyone is different and you should know what types of light are likely to trigger a seizure. However, as a guide it’s usually a flicker rate of between 5-30 times a second that causes seizures.

Hydration

Some seizures are triggered by dehydration. Headaches can be a sign of dehydration. Hangovers are the ultimate example as alcohol dehydrates the body. Clubs are hot places. You dance, burn calories and sweat a little. Even if you’re drinking soft-drinks you can still be dehydrated. So, it’s vital you listen to your body on a night out. Drink plenty of water throughout the day before you go out and when you get home. Don’t feel pressured to keep up with friends. Swap alcoholic drinks for water or a soft drink and balance your fluid levels.

Are you thinking about drinking alcohol?

If you are over 18 and thinking about drinking alcohol, it’s important you understand how your body reacts to alcohol and how your meds might change that. Your meds, or your seizures, might mean that your epilepsy health team recommend you don’t drink at all, or very much.

Find out more
2 young girls playing a dance mat in an arcade

Life hack - Daisy and Beth take sunglasses out with them!

Sleep

It’s easy to deprive yourself of sleep. Sometimes there’s just not enough hours in the day. But if tiredness is one of your triggers it’s worth planning your sleep ahead. Alcohol disrupts sleep. Having a good night’s sleep before and after a night out will help you recover.

ID

For most places, you need a form of ID to get into a bar or club on a night out. Not everyone has a driving license, and sometimes taking your passport just isn't the best thing to do. The PASS Scheme accredits a number of national and local suppliers of hologram cards. To apply for a card you need to contact one of the schemes on their site but it's the perfect ID card to take on a night out and is accepted just like any other form of ID. Check out their site to have your new ID in no time. 

Your top tips for going out

We wanted to know your top tips for going clubbing with epilepsy so we asked your opinion. So, before you’re getting ready for your next night out, take a mo to read these real-life tips from those who know best - you.

1. Go out with people you trust

'Stay with your friends. Knowing they know about your epilepsy will put your mind at ease. Also make sure you’re with someone who knows about your epilepsy and what to do if you have a seizure.'

2. Keeping your medication

'Take your medication with you and take them at the same time as normal. Don't skip your meds thinking you'll be able to enjoy a drink more. Tell the bar security you have them to avoid any issues during the night.'

3. Take a pair of sunglasses

'Take a pair of sunnies with you. If the lights get too much, you can pop them on even if you aren't photosensitive - it really helps me! Know you can just walk out if you need to, there's no pressure to be on the dance floor 24/7.'

4. Take a break

'Don’t be afraid to say to your friends that you need a break, take a breather from dancing, find somewhere to sit and go outside every now and then to get some fresh air. Ask to go to the medical room for some time out if you need it.'

5. Confidence is key

'No one knows your body, and what you need, more than you. Be confident in your condition and don’t let others judge. They don't know you and you don't need that kind of negative energy ruining your night out. Good vibes only!'

6. Know your limits

'Know your limitations with alcohol and keep hydrated – before, after and during the night. Even if you're tempted to push it - it's really not worth it, trust me! You'll feel so much better the next day. Water is your best friend. '

7. Don't feel pressured

'Do what you’re comfortable with and be in control at all times. Don’t feel pressured into doing anything you feel uncomfortable with, you know your body and your limits best.'

8. ID

'If you don't have a driving license, don't take your passport out with you. Head to the Pass Scheme website to get your new form of photo ID, perfect for a night out.'

HAVE FUN!

Can I drink with epilepsy?

Explore the considerations around drinking alcohol for people with epilepsy, and tips for making informed decisions about drinking.

The Channel

A space for young people, aged 13+, who are living with epilepsy, for them to share, learn and find support.