cheers with a beer

Can I drink with epilepsy?

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Before we start, let’s get a few things out in the open. We’re talking about drinking alcohol, that means that if you are under 18 (in the UK), this page isn't for you. You also might be tea-total, in which case, this probably isn’t for you either, but if you’re 18 or over and curious to find out more, you're in the right place.

Festivals, parties, birthdays, nights out clubbing, gigs, meals out, dinner at a friend’s, they might all have one thing in common – alcohol. 

You deserve to let your hair down and enjoy yourself, after all life is a reason to celebrate without waiting for a special occasion. And sometimes this includes alcohol. But it’s never all about alcohol and it certainly doesn’t mean you have to drink at all if you don’t want to (or can’t), or drink more than you are comfortable with.

Can I drink?

It’s important you understand how your body reacts to alcohol and how your meds might change that, and what your limits are. 

Your meds, or your seizures, might mean that your epilepsy health team recommend you don’t drink at all, or not very much. Instead of guessing what they might say, the best thing to do is ask them if you can drink. Remember they aren’t there to judge you, they are there to help you to keep safe.

Drinking alcohol is a personal choice and you may choose not to, or are medically advised not to. But if you want to and its safe for you to do so, moderation is key to drinking alcohol for everyone, but especially, you guessed it, when you have epilepsy.

Alcohol can be a part of a fun night out but it’s also a depressant. Remember, alcohol is a chemical drug. It can have negative effects on everyone. It dehydrates the body, it suppresses cognitive functions and makes you feel drunk. It can even cause seizures in people who don’t have epilepsy – particularly those who binge-drink large amounts of alcohol at one time or are dependent on alcohol. Why? Well when the alcohol wears off, your brain tries to achieve its usual rhythm after being slowed down. Over-acceleration of brain activity causes seizures – which is obviously a concern if you have epilepsy.

How much should I drink?

You’re an adult so no-one can tell you how much or how little to drink, although your epilepsy doctor is there to give advice! However, unless you’ve been advised not to drink at all,  when you have epilepsy it’s recommended you drink no more than 2 units* a day (this is the equivalent of one pint or a double spirit), and also factor in some alcohol-free days each week.

Can I drink with my meds?

With everyone’s epilepsy being unique to them, and the meds used to manage your epilepsy being different, it’s tough for us to answer that question, because everyone is unique. Mixing any meds with alcohol may cause side-effects or stop the drugs from working. The same applies to your anti-seizure medications (ASMs). The best thing you can do is ask your epilepsy health team, and check the guidance that comes with your meds (you know, that piece of paper that comes inside the box with every piece of medication you are prescribed – it’s got some pretty handy info on there if you take a few minutes to read it). We’re not saying don’t drink. We’re just saying be informed, be safe, be sensible.

If you’re taking ‘clobazam’ daily, or require buccal midazolam or diazepam regularly, you should avoid alcohol. These medicines and alcohol make a dangerous mix and can suppress the breathing centre in the brain potentially slowing your breathing down to dangerous levels – especially during sleep. Chat to your epilepsy team and read the information supplied with your meds to see what rules apply to taking them and having a drink.

Alcohol can shut down functions in the brain if it’s consumed in large quantities and can affect memory. This is dangerous at the best of times but particularly if you’re on medication and can’t remember whether you took it on time or where you left it. Think about putting some strategies in place for making sure you remember if you’ve taken your meds. Set an alarm on your phone, ask a friend for help, even count the number of meds left in a pack to make sure you’ve taken the right amount.

Hangovers

Most hangovers are caused by dehydration. The older you get, the longer a hangover can last. Is there a cure? No, and it definitely isn't ‘hair of the dog’ – but water can help. Drinking water before, after and during a night out keeps you hydrated. It’s even more important to drink water before you go to sleep, because hangovers can affect your sleep pattern. Let’s look at a simple sum:

  • Hangovers = dehydration
  • Hangovers = lack of sleep
  • Dehydration + lack of sleep = seizures

It doesn’t take much to know what you have to do, does it?

Don’t forget to take your meds

One of the most dangerous things you can do is skip your meds. It doesn’t always feel convenient to take your meds on a night out but if you’re tempted to skip taking them because of an event or big night – don’t. Talk to your epilepsy team about your options and see if you could flex your timetable slightly so your meds can fit around what you planned. Just a little bit of thought and forward planning can help and leave you free to enjoy your plans without all the worry.

Skipping meals can lead to stress on the body which can lead to triggers for seizures, especially if there is alcohol involved - so don’t skip meals.

The most important thing to remember is a night-out should be on your terms and drinking should be your choice, whether you want to drink, how much you drink is down to you. Don’t give in to peer pressure or feel like you have to drink more than you want to. It’s your body and your choice. Do your research and know your limits.

Your top tips for someone who is going to have a drink

We know you have questions about drinking and staying safe. Always talk to your epilepsy doctor or nurse, who knows you well, they will be able to give you advice just for you. 

We also asked young people living with epilepsy for their top tips on what to do on a night-out or special occasion. 

1. Talk to your doctor

'Talk to your doctor and find out how alcohol might affect your medication. Everyone is different and so is every anti-seizure medication.'

2. Go out with true friends

'Go out with people you trust and who know you have epilepsy. Make sure you have a trustworthy friend to keep an eye on you.' 

3. Keep track of drinks' 

Keep track of how many drinks you have. Set a limit and stick to it.'

4. Drink water too 

'Don’t forget to drink water and soft drinks to keep you hydrated if you’re having alcohol. It’s always a good idea to try to have more soft drinks than alcoholic ones.'

5. Eat

'Eating’s not cheating. Make sure you eat if you’re drinking alcohol.'

6. Know your limits

'Know your limits, take it slowly and always be in control.'

7. Don't feel pressured

'Only drink when you feel comfortable and in a safe environment. Don’t feel pressured to keep up with everyone else.

8. Don't go overboard

''Don’t go overboard and drink too much.'

9. Rest up

'Have a good night’s rest before (going out) and don’t worry if you need to take a nap the day after.'

Going out tips

Read tips for going out safely while managing epilepsy, from other young people living with epilepsy

The Channel

A space for young people, aged 13+, who are living with epilepsy, for them to share, learn and find support.