Transitioning from paediatric to adult healthcare can be a big step. This section of The Channel provides practical advice and resources to help prepare you for this change.
As you get older, and begin the process of moving from paediatric care to adults’ services, there are changes that happen with your epilepsy care. Your epilepsy team may change, you may visit a different hospital, and there may be some changes to the way your epilepsy is managed.
For most people, transitioning to adult care happens between the ages of 16 -18.
It suddenly changed to the doctor only speaking to me and not my mum.Young person living with epilepsy
Learn about transitioning to adult epilepsy services, what to expect, and steps to ensure a smooth journey toward independence.
What happens when you transition from paediatric to adult epilepsy care?
Anoushka from the Youth Voice Network meets Stacey, a Roald Dahl Epilepsy Nurse Specialist and Bethan, a Roald Dahl Specialist Transition Nurse to discuss what happens when you transition from Children's to Adult's care.
Lisa shares the concerns she has in advance of the change, their experience of moving to adult care and some person recommendations for other parents whose children are approaching the age of transition.
A space for young people, aged 13+, who are living with epilepsy, for them to share, learn and find support.
