Featured
A parent shares a heartfelt and honest look at life after getting a tough diagnosis for a child. It talks about the initial shock and the journey to finding a new normal. It highlights the importance of building a supportive community, adjusting to new routines, and trusting medical professionals. Discover the emotional ups and downs of getting unsolicited advice and comparisons from others.
Featured
Receiving a diagnosis of epilepsy can come as a shock, leaving families feeling frightened, lonely and overwhelmed. Children and young people need help and support understanding their new diagnosis and how it will impact their lives. Help provide the support children need when they need it most.
We are delighted to have been awarded the prestigious accolade of flagship status by the National Youth Agency (NYA) Hear by Right accreditation scheme. The award comes after our consistent commitment to put young people at the forefront of everything we do.
6 Members of Young Epilepsy's Youth Voice Network attended the very first Youth Summit of the International Epilepsy Congress, hosted by the International Bureau of Epilepsy.
Read about our first ever CarFest, the UK's largest family fundraising festival in support of children's charities.
Gene-STEPS: Global genomic collaboration improves lives and treatment for children with epilepsy
What happens when you transition from paediatric to adult epilepsy care?
When it comes to transitioning from paediatric care to adult care, what do you need to know, and what should you ask?
The latest figures from the Royal College of Paediatrics and Child Health (RCPCH) show that epilepsy care for children is improving, but access to services still varies greatly.
A mum is raising awareness of the early signs of epilepsy after her five-year-old son Ruben was accused of 'daydreaming' in class - he now has around 15 absence seizures a day.
Receiving a diagnosis of epilepsy can be frightening and leave young people and their families feeling overwhelmed and isolated. By connecting with other families at our in-person meet-ups, Katelinn and Lorna were able to find mutual support and a safe space to share the challenges they face.
We have launched a text service specifically aimed at young people living with epilepsy that are in distress. With a simple text message quoting the word ‘PURPLE’, users across the UK can access help and support from Shout’s trained volunteers at any time.
