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A parent shares a heartfelt and honest look at life after getting a tough diagnosis for a child. It talks about the initial shock and the journey to finding a new normal. It highlights the importance of building a supportive community, adjusting to new routines, and trusting medical professionals. Discover the emotional ups and downs of getting unsolicited advice and comparisons from others.
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Receiving a diagnosis of epilepsy can come as a shock, leaving families feeling frightened, lonely and overwhelmed. Children and young people need help and support understanding their new diagnosis and how it will impact their lives. Help provide the support children need when they need it most.
Trying to choose a career path and search for a job can be daunting for everyone, but even more so if you have epilepsy. Find out about disclosing your epilepsy, your rights at work and discrimination.
Work can be stressful enough without adding an invisible disability into the mix. Here are our top three tips to help you decrease anxiety, feeling overwhelmed and cope with stress in the workplace.
Jane Ramsey, Young Epilepsy Chair of Trustees, is to have a peerage conferred by His Majesty The King.
From the heartache of 20 seizures a day to the triumph of taking those first steps. Bodhi's journey is a reminder that with support, anything is possible..
Find out what savings you are eligible for on travel and activities if you are person living with epilepsy in the UK
New safety measures are now in place to reduce the risk of harms from the anti-seizure medicine valproate
The UK is experiencing shortages in certain medications, many of which are prescribed for epilepsy. If you are worried about your supply of anti-seizure medications or are having difficulty getting hold of certain prescribed medications speak to your epilepsy team for more advice. Do not stop taking your medication or reduce dosage. Always speak to your doctor before making any changes to your meds.
The Medicines and Healthcare products Regulatory Agency (MHRA) has recently updated their advice for all males taking valproate. Learn more about the new guidance.
Young Epilepsy has welcomed a new quality standard for epilepsy care that say children and young people should be asked about their mental wellbeing and learning at their epilepsy appointments.
Meet Bea, one of the heroes of our #UnderstandMyEpilepsy Campaign. Bea is 15 and experiences focal seizures. For Bea this has meant that her teachers and students at school don't understand her epilepsy and the challenges that she faces.
