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Your rights at school

Back to Your education

What are my rights?

In England, Wales and Scotland the Equality Act means it is against the law for schools to discriminate against you because you have a disability. In Northern Ireland, the Special Educational Needs and Disability (NI) Order means it is against the law for schools to discriminate against you because you have a disability.

You may not think of yourself as disabled. But epilepsy is a disability when it has a substantial and long-term effect on your day-to-day activities, or it would if you were not on treatment.

Reasonable adjustments

Your school must make sure you have full access to education.  They have a legal obligation to support you and remove any barriers you face so you can access and take part the same way as students who do not have a disability. To do this your school must make reasonable adjustments.

Reasonable adjustments are changes your school must make so you are not at a disadvantage compared to other students who do not have a disability. They are specific to you and your needs. They could include:

  • Providing different coloured paper to write on.
  • Allowing extra time to respond to questions or complete work.
  • Allowing regular breaks.
  • Providing technology, like a laptop.
  • Using different ways to record work such as video or audio recordings

Schools are legally obliged to work with you, your family or carers and any other professionals involved to agree the support you need.

Your school is responsible for making a record of what reasonable adjustments have been agreed and making sure all staff who work with you know about them.

Whether something is reasonable will depend on different things, like:

  • If the adjustment is practical.
  • The cost.
  • Whether it will help.
  • Any potential negative impact on others.

What should my school have in place to support me?

There are various things your school should put in place to support you.

An Individual Healthcare Plan (IHP)

Your IHP should include information about your epilepsy including seizures types, how you manage your epilepsy and how it affects you. It should also include what to do in an emergency.

teacher and student

Help your school to understand the affect of epilepsy on your learning

You could share Young Epilepsy's Guide for Schools with your parents or carers and your school. It has lots of information for schools about how to support students with epilepsy.

Share our Guide for Schools

What are special educational needs?

Special educational needs refer to any difficulties you have that make it harder to learn compared to other students your age. They can include difficulties with:

  • Reading and writing.
  • Your ability to understand things.
  • Behaviour.
  • Concentration.
  • Physical abilities.

How do I get special educational needs support at school?

Depending on where in the UK you live different terms will be used for special educational needs.

You have Special Educational Needs (SEN) if you find it much harder to learn compared to other students your age, or if you have a disability that prevents you from accessing school. If your parents or carers think you have SEN, they should speak to any professional involved in your care or the special educational needs coordinator (SENCo) at your school.

If you need more help, you may be able to get an Education, Health and Care (EHC) plan. You will need an education, health and care needs assessment to find out if you’re entitled to an EHC plan. These are carried out by your local authority. Your parents or carers, or school can ask for one. If you are over 16 you can ask for one yourself. The process can be long and complicated.

If you are aged 16 to 25 and unhappy with the support your school is giving you, you can talk to a teacher, the headteacher or the SENCo. If you are still unhappy after speaking to them, you should follow the school complaints procedure. It should be available on their website. If that doesn’t work, you can contact your local authority. If you want to make a complaint it can be helpful to get support from your parents or carers, or an advocate.

GOV.UK has a guide for young people on SEND complaints which explains your options in more detail.

Contact has more information about special educational needs and disabilities.

You have Additional Support Needs (ASN) if you need extra or different support compared to other students your age. If your parents or carers think you have additional support needs, they should talk to your class teacher or guidance teacher. They can also write to the school to ask for a formal assessment. If the school does not agree you need an assessment, your parents or carers can ask the local authority for an assessment. If you are over 12 you may be able to ask for the assessment yourself.

If you’re aged 12 to 15 My Rights, My Say can help you with your rights to be involved in decisions that affect your learning.

Enquire has more information about additional support for learning and how to resolve problems at school.

You have Additional Learning Needs (ALN) if you need extra support in education. It was previously known as Special Educational Needs (SEN). If you are 16 or over, you will be the main person making decisions. Although you may want to ask your parents and carers for support with decisions.

If you or your parents or carers think you need extra help speak to your school's Additional Learning Needs Coordinator (ALNCo). If it’s decided you have Additional Learning Needs, you will receive support through an Individual Development Plan (IDP).

If you are unhappy about a decision related to your Additional Learning Needs, you can ask the local authority to review it. You might want to get support from your parents or carers or an advocate if you want to challenge a decision about your Additional Learning Needs.

SNAP Cymru has more information on Additional Learning Needs.

You have Special Educational Needs (SEN) if you have a learning problem or disability that makes it more difficult for you to learn than other students your age. If your parents or carers think you need extra support in school, they should talk to your teacher or the person responsible for helping students with special education needs.

nidirect has more information on Special Educational Needs in Northern Ireland.

SENAC can provide information and advice on getting help and support for special educational needs in Northern Ireland.

What should I do if I have problems at school?

If you are having problems at school, you should speak to someone you trust.

If your parents or carers are worried, they can raise concerns with the school. Who they need to speak to will depend on what the concern is about. Usually, it is best to raise any concerns informally first and if that does not work, make a formal complaint.

Contact have more information about raising concerns and complaints.

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