students in corridor

Will epilepsy affect my learning?

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Impact on learning

Different people have different experiences of how epilepsy affects them at school. Not every young person with epilepsy will experience difficulties learning. But some people may find they have more difficulty learning than students who don’t have epilepsy. Reasons for this can include:

  • Seizures and the impact they have such as feeling tired or losing concentration.
  • Side effects of anti-seizure medication such as a lack of energy or drowsiness.
  • Other conditions such as autism or ADHD (attention deficit hyperactivity disorder).
  • Any underlying cause of epilepsy, such as a brain injury.

You may experience problems with:

  • Listening to and understanding information and finding the right words (communication)
  • Memory and concentration (cognition)
  • Coordination. For example, finding it difficult to write, kick a ball or hit a ball with a bat (motor skills)

These can affect your learning. But there are lots of things your school can do to support you, including:

  • Repeating and rephrasing information.
  • Using visual prompts and aids.
  • Providing information in chunks.
  • Recapping information.
  • Allowing additional time.
  • Adapting tasks or activities.

If you are having difficulties speak to your teachers, family or carers. They are there to help you.

Young Epilepsy has developed the ABLE tool (Assessment of Behaviour and Learning in Epilepsy). It aims to help your teachers, parents or carers understand more about how epilepsy affects you and help them make sure you have the support you need.

How epilepsy affected MY learning

Read from 3 people who have first had experience of how epilepsy can affect your learning and school life.

How epilepsy affected MY learning

Anoushka's education experience

Anoushka

Anoushka's blog shares how life has been at school and college, with epilepsy. Anoushka's top tips might also give you some pointers to help at school!

How epilepsy affected MY learning

I am Jasmine

Charlotte Heighton

Meet Jasmine, one of the heroes of our #UnderstandMyEpilepsy Campaign. Jasmine is 18 and experiences prolonged tonic clonic seizures. ForJasmine, this has meant that her teachers and students at school don't understand her epilepsy and the challenges that she faces.

What should my school have in place to support me?

An Individual Healthcare Plan (IHP) is a simple document that helps make sure you’re safe and supported at school if you have epilepsy. It explains your condition, what kind of help you might need, and how your school can make sure you’re included in everything.

Your IHP will describe what your seizures look like, how to manage them, and if your medication has any side effects. It also includes clear instructions on what to do in an emergency, like when to call an ambulance.

Your IHP is created with input from you, your family, your school, and your doctors. It’s the school’s job to make sure the plan is followed, and it says who will help you with different parts of your care.

Because epilepsy can change over time, your IHP should be updated every year or if something about your condition changes. Even if your seizures are under control, an IHP is important because epilepsy might still affect how you learn and behave.

What should be in an IHP?

  • Your epilepsy diagnosis
  • A description of your seizures and any warning signs
  • Triggers for your seizures (if you have any)
  • Seizure first aid and care after a seizure
  • Your medication and dosage
  • Emergency instructions
  • How epilepsy affects your learning and behavior
  • Any extra support or changes needed at school, like during exams or in the classroom
  • Permission from your parents and the school to give you medication during school hours
  • Contact information and who at school needs to know about your condition

Download your Individual Healthcare Plan template

teacher and student

Help your school to understand the affect of epilepsy on your learning

You could share Young Epilepsy's Guide for Schools with your parents or carers and your school. It has lots of information for schools about how to support students with epilepsy.

Share our Guide for Schools

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The Channel

A space for young people, aged 13+, who are living with epilepsy, for them to share, learn and find support.