Blogs
Here you will find tips, opinions, and info on different topics
Blogs and Stories
Stories
True accounts from real people, giving you a glimpse into their lives and experiences
Filling the Void
Help us improve resources for newly diagnosed children and young people with epilepsy. Donate to our Christmas appeal today.
To the parent of a recently diagnosed child
A parent shares a heartfelt and honest look at life after getting a tough diagnosis for a child and the initial shock and the journey to finding a new normal. The letter highlights the importance of building a supportive community, adjusting to new routines, and trusting medical professionals.
Osiris and his Epilepsy Diagnosis
Discover Osiris' journey with epilepsy and learn how vital support, resources, and information can make a difference for newly diagnosed children.
Lexi's Epilepsy Diagnosis: A Mother's Journey
Discover Lexi's epilepsy diagnosis journey, told by her mum Sarah, and how vital support from Young Epilepsy can make all the difference.
The Need for Better Resources for Young People with Epilepsy
Receiving a diagnosis of epilepsy can come as a shock, leaving families feeling frightened, lonely and overwhelmed. Children and young people need help and support understanding their new diagnosis and how it will impact their lives. Help provide the support children need when they need it most.
Meadow's Journey
Discover Meadow's journey with epilepsy, from diagnosis to finding community support through Young Epilepsy. Help others facing epilepsy find hope and resources.
Rachel’s diagnosis journey
Follow Rachel’s journey from epilepsy diagnosis to finding support and understanding, sharing her insights and resilience along the way.
Daisie's Journey: Navigating the Challenges of Epilepsy
Follow Daisie's rare epilepsy journey & how her family copes. Learn about STXBP1 gene, challenges, and Purple Day's impact. Join us in supporting kids like Daisie!
Bodhi's Triumph: A year of progress, resilience, and hope
From the heartache of 20 seizures a day to the triumph of taking those first steps. Bodhi's journey is a reminder that with support, anything is possible..
I am me, not my Autism
Livvy was diagnosed with Autism just after her 18th birthday. In her blog she discusses how she always 'felt different' and calls for greater understanding towards autism.