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Your voice matters: Send your message to government
Speak up for children with epilepsy. Send a message to the government to ensure better support in schools for children with epilepsy.
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Jay Bothroyd Joins Young Epilepsy as Ambassador
We are thrilled to announce that former professional footballer, Jay Bothroyd, has joined us as an official Young Epilepsy ambassador.
Parliamentary committee calls for new online epilepsy safety law
A parliamentary committee has recommended that a new law should be introduced to protect people with photosensitive epilepsy online. This would make it an offence to send flashing images to someone with the intent of causing a seizure.
Young Epilepsy trustee named in annual global list of influential researchers
Young Epilepsy trustee, Professor Helen Cross OBE, has just been ranked one of the world’s most influential scientists on Clarivate’s annual ‘Highly Cited Researchers List’ 2021, which recognises authors of the most influential research papers around the world.
Young people say epilepsy is a significant toll on mental wellbeing
A survey of over 240 young people with epilepsy has found that 77% said living with the condition has had a significant impact on their mental wellbeing. This includes their thoughts, feelings and how they are able to cope with everyday life.
Register your interest for our running events in 2022
Your dedication is making a lasting difference to thousands of young lives across the UK. With your help, more children and young people who are living with epilepsy can get the support they need to thrive and fulfil their potential.
New research investigates the evidence on co-occurring autism and epilepsy
If you have autism, you are more likely to have epilepsy than someone without autism. We know that worldwide approximately 8.4 million people have both conditions, and they face some of the starkest inequalities in the world.
Young Epilepsy research shows lack of school support for children with epilepsy
A Young Epilepsy research study has found that many children with epilepsy are not getting the support they need at school. More than half of the children reported that some of their teachers and friends did not know that they had epilepsy. Parents have highlighted that school staff should be informed about the impact of epilepsy on learning and behaviour, in order to provide holistic support.
When Young Epilepsy met Olympian, Beth Dobbin
Olympic Athlete, Beth Dobbin, experienced a large seizure 13 years ago, which affected her movement, speech and memory and resulted with some time spent in hospital.
Children with epilepsy are missing out on vital support
Children and young people with epilepsy need better access to mental health support services, with only 15% of Health Boards and Trusts currently able to integrate mental health provision within their epilepsy clinics, according to the latest Epilepsy12 report from the Royal College of Paediatrics and Child Health (RCPCH).
Young people's views on epilepsy care
Today we’re publishing the results of our young people’s survey, all about their experience of epilepsy care and how this has changed as they’ve grown older.
Children write to Prime Minister on siblings' access to cannabis-based seizure treatments
Nine-year-old Thomas Braun delivers a letter to the Prime Minister about his families’ challenges in accessing cannabis-based seizure treatments for his brother.