News and blogs

School children in a classroom with their hands up

More than 16,000 of you joined us to make a stand

The overwhelming response to our recent petition calling for governments to ensure every child with epilepsy has a current Independent Healthcare Plan (IHP) in school has shown just how critical this issue is.

Children with epilepsy are missing out on vital support

Children and young people with epilepsy need better access to mental health support services, with only 15% of Health Boards and Trusts currently able to integrate mental health provision within their epilepsy clinics, according to the latest Epilepsy12 report from the Royal College of Paediatrics and Child Health (RCPCH).

Young people's views on epilepsy care

Today we’re publishing the results of our young people’s survey, all about their experience of epilepsy care and how this has changed as they’ve grown older.

Survey – Young people’s experiences of epilepsy care

We’re asking young people to tell us how their experience of epilepsy care has changed as they’ve gotten older. The survey will help us understand what information or support young people might like to receive, as well as how healthcare for young people with epilepsy can be improved.

National epilepsy report features St Piers pupil

Young Epilepsy is really pleased that Jake, one of our students from St Piers School, is featured on the front cover of the recent Epilepsy12 report (published by the Royal College of Paediatrics and Child Health). The report charts children's first year of epilepsy care across the country, as well as the epilepsy services provided in different areas. Young Epilepsy works closely with RCPCH, as part of the Epilepsy12 project board.

Children missing out on vital epilepsy care - new report finds

A new report charting children’s first year of epilepsy care shows families facing delays and barriers to diagnosis and treatment. The latest Epilepsy12 report from the Royal College of Paediatrics and Child Health (RCPCH) highlights the experiences of children across England and Wales in 2018-19.

Young Epilepsy & Epilepsy Research UK Collaboration

Applications opened last week for the first-ever Epilepsy Research UK Young Epilepsy Fellowship Award. This unique and potentially life-saving collaboration aims to improve epilepsy treatment for young people by addressing the causes, diagnosis and clinical management of childhood epilepsies.