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Speak up for children with epilepsy. Send a message to the government to ensure better support in schools for children with epilepsy.
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Jay Bothroyd Joins Young Epilepsy as Ambassador
We are thrilled to announce that former professional footballer, Jay Bothroyd, has joined us as an official Young Epilepsy ambassador.
Young Epilepsy announced as official CarFest Charity Partner 2023
Young Epilepsy is an official charity partner of the country’s largest family fundraising festival – CarFest!
Young Epilepsy joins forces with Geek Retreat
We’re teaming up with Geek Retreat to create an inclusive gaming space for young people with epilepsy.
Thank you Fliss
A special shout out to the incredible Fliss who completed the 26 miles in 26 days challenge as part of our Purple Day celebrations. Fliss was our top fundraiser for the challenge, raising £1,200. Read her story here.
SUDEP Action & Young Epilepsy team up to create an epilepsy risk Checklist for children
SUDEP Action and Cornwall Partnership NHS Foundation Trust are collaborating with Young Epilepsy to create a paediatric version of the SUDEP and Seizure Safety Checklist. The award-winning Checklist, which launched in 2015, supports health professionals in discussing epilepsy mortality risks and SUDEP (Sudden Unexpected Death in Epilepsy) with their patients (aged 16+).
Public Statement from Coalition of Epilepsy Organisations
Young Epilepsy is joining with other organisations from the epilepsy community to call for a review of proposals that could have an impact on access to the anti-seizure medication valproate.
Too many women unaware of the risks linked to epilepsy medication in pregnancy
Epilepsy Medications in Pregnancy Survey Report
Epilepsy medication - Valproate update
The medicines regulator (MHRA) has announced further changes to prescribing the epilepsy medication valproate which are due to be introduced over the coming months.
Zach's Law
Young Epilepsy is one of several epilepsy charities that has been targeted on Twitter by individuals posting flashing images in an attempt to induce seizures. Epilepsy Society have led the ‘Zach’s Law’ campaign for greater protection online for people with epilepsy. The campaign was named after one of their young supporters who was targeted on social media.
Epilepsy medicines in pregnancy survey
If you are a woman or girl with epilepsy - or their parent - we would like to hear from you.
Your priorities for epilepsy research
As a member of the UK Epilepsy Priority Setting Partnership (PSP), Young Epilepsy is delighted to announce the Top Ten priorities for epilepsy research.