To mark the official launch of the Epilepsy Research Institute UK (ERI UK) Young Epilepsy CEO, Mark Devlin and Head of Health, Research and Compliance, Rosemarie Pardington, attended a reception at the famous address with George Freeman MP, Minister for Science, Research and Innovation.
NHS England has launched a new ‘bundle of care’ for children’s epilepsy services setting out standards that all young people should expect.
This month sees us launching our new Understand My Epilepsy campaign. We are standing shoulder to shoulder with young people living with epilepsy across the UK and tackling the issue of inclusion.
We are delighted to have been awarded the prestigious accolade of flagship status by the National Youth Agency (NYA) Hear by Right accreditation scheme. The award comes after our consistent commitment to put young people at the forefront of everything we do.
Gene-STEPS: Global genomic collaboration improves lives and treatment for children with epilepsy
The latest figures from the Royal College of Paediatrics and Child Health (RCPCH) show that epilepsy care for children is improving, but access to services still varies greatly.
A mum is raising awareness of the early signs of epilepsy after her five-year-old son Ruben was accused of 'daydreaming' in class - he now has around 15 absence seizures a day.
Receiving a diagnosis of epilepsy can be frightening and leave young people and their families feeling overwhelmed and isolated. By connecting with other families at our in-person meet-ups, Katelinn and Lorna were able to find mutual support and a safe space to share the challenges they face.
We have launched a text service specifically aimed at young people living with epilepsy that are in distress. With a simple text message quoting the word ‘PURPLE’, users across the UK can access help and support from Shout’s trained volunteers at any time.
Young Epilepsy is an official charity partner of the country’s largest family fundraising festival – CarFest!
