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A parent shares a heartfelt and honest look at life after getting a tough diagnosis for a child. It talks about the initial shock and the journey to finding a new normal. It highlights the importance of building a supportive community, adjusting to new routines, and trusting medical professionals. Discover the emotional ups and downs of getting unsolicited advice and comparisons from others.
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Receiving a diagnosis of epilepsy can come as a shock, leaving families feeling frightened, lonely and overwhelmed. Children and young people need help and support understanding their new diagnosis and how it will impact their lives. Help provide the support children need when they need it most.
Explore Fiazah's journey of navigating her future while living with epilepsy, sharing insights and motivation for others on a similar path.
Discover Zaid's journey of shaping his future while living with epilepsy, sharing experiences and advice for others in similar situations.
Epilepsy is not a mental health condition, yet children and young people with epilepsy are four times more likely to develop mental health problems than their peers. To help address the situation, Young Epilepsy has now launched a petition to call on healthcare leaders across the UK to ensure that every child with epilepsy is offered mental health screening and support as an integrated part of their paediatric epilepsy care.
Discover Lucie’s journey of managing epilepsy while focusing on her wellbeing, offering insights and encouragement for others.
A parliamentary committee has recommended that a new law should be introduced to protect people with photosensitive epilepsy online. This would make it an offence to send flashing images to someone with the intent of causing a seizure.
Young Epilepsy trustee, Professor Helen Cross OBE, has just been ranked one of the world’s most influential scientists on Clarivate’s annual ‘Highly Cited Researchers List’ 2021, which recognises authors of the most influential research papers around the world.
A survey of over 240 young people with epilepsy has found that 77% said living with the condition has had a significant impact on their mental wellbeing. This includes their thoughts, feelings and how they are able to cope with everyday life.
Read Hollie's inspiring story about her life with epilepsy, sharing her challenges, triumphs, and the lessons learned along the way.
Explore Sam's personal story of living with epilepsy, sharing his experiences, challenges, and how he navigates life with the condition.
Read Annie's journey of expressing her experiences with epilepsy, sharing how finding the right words has empowered her and inspired others.
