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Epilepsy & Me

Living with epilepsy can be challenging. Our support groups are here to help.

We understand that managing epilepsy can be stressful, but don't worry, you're not alone!

Our 'Epilepsy and me' support groups provide a safe space where you can ask questions, share experiences, learn new strategies, and get the support you need. You’ll also get the chance to connect with other young people who understand what you're going through.

We offer monthly remote-based sessions, focused specifically on epilepsy. These sessions are designed as a support group for sharing stories and finding community, with 8-10 attendees per session.

Things to know:

Remote-based sessions, starting at 5pm on the first Monday of each month (sessions rotated by age group)
8-10 attendees per session
Focussed specifically on living with epilepsy, 'Epilepsy & Me' support groups are designed for asking questions, sharing stories and finding community.

If you would like a break from epilepsy, and just want to hang out with other young people who get it, try our Virtual Youth Groups.

Read on to discover the right support group for you.

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'What is epilepsy?'

If you join our youngest group, aged 8-10, your parents will be able to attend with you as observers, allowing them to see things through your eyes. These sessions focus on understanding epilepsy and provide a safe space for you to ask questions and express your experiences.

Things to know:

For 8-10 year olds with parental supervision
Themes: Understanding your epilepsy
Duration: 45 minutes

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'Teen talk with epilepsy'

For those of you who are a bit older, aged 11-15, these sessions will focus on independence, school, and friendships. You'll get the support you need to navigate these common themes while building a strong community.

Things to know:

For 11-15 year olds with parental consent
Themes: Independence, school, friendships
Duration: 1 hour

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'The Road Ahead'

These sessions are suitable for you if you’re between the ages of 16-18, and aim to address current and future aspirations around careers, driving, dating, and transitioning into adulthood, with guidance from our experienced Youth Support team.

Things to know:

For 16-18 year olds
Themes: Future aspirations, careers, driving, dating, transitioning into adulthood
Duration: 1 hour

Why are there different groups?

We split the groups by age so that the help you get is just right for you and your friends. This way, you can talk about things that matter to you and share your stories. By focusing on what each age group needs, we can give better support and help everyone feel more connected.

It can often feel like a very lonely path. I hope that by sharing our epilepsy journey, we can help other young people and parents feel less alone.

Parent

Join our 'Epilepsy and me' support groups today

Connect with others who understand what you're going through. Ask questions, share your experiences, and find a supportive community. Take the first step towards managing your epilepsy with confidence!