Policies & reports

What I Need In School WINS 2023

Children with epilepsy are at a greater risk of learning and behavioural difficulties than children without epilepsy. Despite this, there is a lack of research exploring the views and experiences of young people with epilepsy, their parents and school staff with regards to educational supports that could aid learning in children with the condition.

Annual Report 13-14

Our purpose at Young Epilepsy is to help create a society in which children and young people living with epilepsy can thrive and fulfil their potential, have their voices listened to and respected, and their ambitions realised.

Improving Care in Epilepsy 2013

The report provides key findings which look beyond the often-quoted statistics, to identify the real barriers and enablers to providing better care. In its key recommendations, it provides a proposed set of shared goals towards the aim of improving epilepsy services for children and young people. Policy-makers and commissioners must take these recommendations and work together - in collaboration with professionals and with children, young people and their parents - in order to achieve lasting and transformational change. It is only through this process that the type of service that children and young people with epilepsy deserve can be delivered.

Annual Report 12-13

Our purpose at Young Epilepsy is to help create a society in which children and young people living with epilepsy can thrive and fulfil their potential, have their voices listened to and respected, and their ambitions realised.

What Helps? What Hinders? 2012

What helps children with epilepsy to be included in education? What factors can hinder inclusion? These are the questions that the research outlined in this report set out to address. We have investigated whether children with epilepsy are fully included in all aspects of school life. This includes all areas of learning and the curriculum, social engagement and extracurricular activities.