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Children with epilepsy are at a greater risk of learning and behavioural difficulties than children without epilepsy. Despite this, there is a lack of research exploring the views and experiences of young people with epilepsy, their parents and school staff with regards to educational supports that could aid learning in children with the condition.
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Explore the latest findings and breakthroughs in epilepsy research. Our 2023 report highlights advancements and insights for a brighter future.
Young Epilepsy coordinates and funds research into the causes, treatments and impact of all aspects of childhood epilepsy. We want to secure the best outcome for everyone affected by the childhood epilepsies and we know the best way to do this is through research.
The purpose of the SEEN study was to document, on a population basis, the development and behaviour of young children with epilepsy. The study also focused on emotional wellbeing, sleep and fatigue in their parents. A comparison group of children with neurodisability were included; these children did not have epilepsy but had other neurological or neurodevelopmental problems. This comparison allowed us to study whether having a child with epilepsy, specifically, has an impact on parental functioning.
The survey findings from our online survey of young people with epilepsy and their parents and carers to find out whether schools are providing support that complies with Government standards.
Our purpose at Young Epilepsy is to help create a society in which children and young people living with epilepsy can thrive and fulfil their potential, have their voices listened to and respected, and their ambitions realised.
Young Epilepsy coordinates and funds research into the causes, treatments and impact of all aspects of childhood epilepsy. We want to secure the best outcome for everyone affected by the childhood epilepsies and we know the best way to do this is through research.
Our purpose at Young Epilepsy is to help create a society in which children and young people living with epilepsy can thrive and fulfil their potential, have their voices listened to and respected, and their ambitions realised.
Our purpose at Young Epilepsy is to help create a society in which children and young people living with epilepsy can thrive and fulfil their potential, have their voices listened to and respected, and their ambitions realised.
Young Epilepsy coordinates and funds research into the causes, treatments and impact of all aspects of childhood epilepsy. We want to secure the best outcome for everyone affected by the childhood epilepsies and we know the best way to do this is through research.
This study arose from a senior politician saying to us “I know that people with epilepsy are not counted in schools and I know that they have a wide range of cognitive and behavioural problems but you have to do something that brings this to everyone’s attention”. Our response was to have four international annual meetings that highlight these problems, a new course for professionals and this; The CHESS Study.
Our purpose at Young Epilepsy is to help create a society in which children and young people living with epilepsy can thrive and fulfil their potential, have their voices listened to and respected, and their ambitions realised.
