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Research & Impact Report 2023
Explore the latest findings and breakthroughs in epilepsy research. Our 2023 report highlights advancements and insights for a brighter future.
Policies & reports
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Epilepsy Medications in Pregnancy Survey Results – February 2023
This survey looked to measure current levels of awareness around the risks of valproate, as well as the levels of awareness around the other epilepsy medicines.
Autism and Epilepsy: Laying out the evidence (Snapshot)
People who are autistic and have epilepsy face some of the starkest inequalities in the world. We know that worldwide approximately 8.4 million people have both conditions. On average, they have poorer quality of life, poor health and can die early. We’ve known this for years, but a lack of evidence-based strategic action has blocked progress.
Epilepsy in schools
This report seeks to gain an understanding of the views of young people with epilepsy, their parents and school staff regarding educational and therapeutic provision, understanding of epilepsy and seizure management in schools
Research Projects 2021
This document outlines the new, ongoing, and completed projects during July 2020 to June 2021.
The perceived impact of COVID-19 (2020)
An online survey was used to explore the perceived impact of COVID-19 and associated restrictions on young people with epilepsy in the UK
Research Report 2020
Young Epilepsy coordinates and funds research into the causes, treatments and impact of all aspects of childhood epilepsy. We want to secure the best outcome for everyone affected by the childhood epilepsies and we know the best way to do this is through research.
Research Report 2019
Young Epilepsy coordinates and funds research into the causes, treatments and impact of all aspects of childhood epilepsy. We want to secure the best outcome for everyone affected by the childhood epilepsies and we know the best way to do this is through research.
Research Report 2018
Young Epilepsy coordinates and funds research into the causes, treatments and impact of all aspects of childhood epilepsy. We want to secure the best outcome for everyone affected by the childhood epilepsies and we know the best way to do this is through research.
Knowledge of and attitudes towards epilepsy among teachers
The objective of this study was to systematically review research that has focused on knowledge of and attitudes towards epilepsy among teachers.
The SEEN Study 2017
The purpose of the SEEN study was to document, on a population basis, the development and behaviour of young children with epilepsy. The study also focused on emotional wellbeing, sleep and fatigue in their parents. A comparison group of children with neurodisability were included; these children did not have epilepsy but had other neurological or neurodevelopmental problems. This comparison allowed us to study whether having a child with epilepsy, specifically, has an impact on parental functioning.
Research Report 2016-17
Young Epilepsy coordinates and funds research into the causes, treatments and impact of all aspects of childhood epilepsy. We want to secure the best outcome for everyone affected by the childhood epilepsies and we know the best way to do this is through research.