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Research & Impact Report 2023
Explore the latest findings and breakthroughs in epilepsy research. Our 2023 report highlights advancements and insights for a brighter future.
Policies & reports
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Epilepsy Medications in Pregnancy Survey Results – February 2023
This survey looked to measure current levels of awareness around the risks of valproate, as well as the levels of awareness around the other epilepsy medicines.
Research Projects 2022 - 2023
This page outlines the new, ongoing, and completed projects during July 2022 to June 2023.
Physical Activity in Children With Epilepsy
Accelerometer and Survey Assessed Physical Activity in Children With Epilepsy: A Case-Controlled Study - Paper published March 2024
Research Projects 2022
Explore the latest insights and discoveries in epilepsy research with our comprehensive Young Epilepsy Research Projects 2022 report. Discover how pioneering studies are shaping the future of epilepsy treatment and improving the lives of young individuals affected by this condition.
Valproate survey 2020
Between October 2019 and January 2020, Epilepsy Action worked with Epilepsy Society and Young Epilepsy to conduct another survey of women who have taken or who are taking valproate, since the introduction of the Pregnancy Prevention Programme (PPP)
Research Report 2022
Young Epilepsy coordinates and funds research into the causes, treatments and impact of all aspects of childhood epilepsy. We want to secure the best outcome for everyone affected by the childhood epilepsies and we know the best way to do this is through research.
Research Report 2021
Young Epilepsy coordinates and funds research into the causes, treatments and impact of all aspects of childhood epilepsy. We want to secure the best outcome for everyone affected by the childhood epilepsies and we know the best way to do this is through research.
Young people’s experiences of epilepsy and mental wellbeing 2021
We surveyed young people with epilepsy (aged 25 and under) about how living with epilepsy has affected their mental wellbeing (their thoughts, feelings and how they are able to cope with everyday life).
Autism and Epilepsy: Laying out the evidence
People who are autistic and have epilepsy face some of the starkest inequalities in the world. We know that worldwide approximately 8.4 million people have both conditions. On average, they have poorer quality of life, poor health and can die early. We’ve known this for years, but a lack of evidence-based strategic action has blocked progress.