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A parent shares a heartfelt and honest look at life after getting a tough diagnosis for a child. It talks about the initial shock and the journey to finding a new normal. It highlights the importance of building a supportive community, adjusting to new routines, and trusting medical professionals. Discover the emotional ups and downs of getting unsolicited advice and comparisons from others.
Featured
Receiving a diagnosis of epilepsy can come as a shock, leaving families feeling frightened, lonely and overwhelmed. Children and young people need help and support understanding their new diagnosis and how it will impact their lives. Help provide the support children need when they need it most.
Mum of three, Kelly has more experience than most of supporting children with epilepsy as both her son Cash, 11, and daughter Darla, 9, have been diagnosed with focal epilepsy.
My journey is not just about sports and triathlons; it’s also about managing my epilepsy.
The Power of research – Joint Research Reception
An Individual Healthcare Plan (IHP) is a detailed document created for school-age students with medical conditions, such as epilepsy.
Sign our petition today to ensure every child with epilepsy has an Individual Healthcare Plan in school.
Inspired by the story of Cash, who faced exclusion from a football camp due to his epilepsy, former premiership footballer, Jay Bothroyd, joined us for a day of football skills and coaching at a fun football session in the Easter holidays.
Follow Daisie's rare epilepsy journey & how her family copes. Learn about STXBP1 gene, challenges, and Purple Day's impact. Join us in supporting kids like Daisie!
Seizure dogs are support dogs that can help some people with epilepsy. But what is a seizure dog? How they can help? And who might qualify to be paired with one?
Evidence for a new psychological treatment for children with epilepsy has been published in The Lancet.
Kelly, a mother to two children with epilepsy, shares her heartfelt journey of navigating the complexities, fears, and triumphs that come with raising children with this condition.
