Featured
The latest figures from the Royal College of Paediatrics and Child Health (RCPCH) show that some areas of epilepsy care for children are improving, but access to services still varies greatly.
Featured
The overwhelming response to our recent petition calling for governments to ensure every child with epilepsy has a current Independent Healthcare Plan (IHP) in school has shown just how critical this issue is.
The latest figures from the Royal College of Paediatrics and Child Health (RCPCH) show that epilepsy care for children is improving, but access to services still varies greatly.
A mum is raising awareness of the early signs of epilepsy after her five-year-old son Ruben was accused of 'daydreaming' in class - he now has around 15 absence seizures a day.
Receiving a diagnosis of epilepsy can be frightening and leave young people and their families feeling overwhelmed and isolated. By connecting with other families at our in-person meet-ups, Katelinn and Lorna were able to find mutual support and a safe space to share the challenges they face.
Young Epilepsy is an official charity partner of the country’s largest family fundraising festival – CarFest!
We’re teaming up with Geek Retreat to create an inclusive gaming space for young people with epilepsy.
A special shout out to the incredible Fliss who completed the 26 miles in 26 days challenge as part of our Purple Day celebrations. Fliss was our top fundraiser for the challenge, raising £1,200. Read her story here.
SUDEP Action and Cornwall Partnership NHS Foundation Trust are collaborating with Young Epilepsy to create a paediatric version of the SUDEP and Seizure Safety Checklist. The award-winning Checklist, which launched in 2015, supports health professionals in discussing epilepsy mortality risks and SUDEP (Sudden Unexpected Death in Epilepsy) with their patients (aged 16+).
Young Epilepsy is joining with other organisations from the epilepsy community to call for a review of proposals that could have an impact on access to the anti-seizure medication valproate.
Epilepsy Medications in Pregnancy Survey Report
The medicines regulator (MHRA) has announced further changes to prescribing the epilepsy medication valproate which are due to be introduced over the coming months.
