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Receiving a diagnosis of epilepsy can come as a shock, leaving families feeling frightened, lonely and overwhelmed. Children and young people need help and support understanding their new diagnosis and how it will impact their lives. Help provide the support children need when they need it most.
Featured
A parent shares a heartfelt and honest look at life after getting a tough diagnosis for a child. It talks about the initial shock and the journey to finding a new normal. It highlights the importance of building a supportive community, adjusting to new routines, and trusting medical professionals. Discover the emotional ups and downs of getting unsolicited advice and comparisons from others.
Susanna was diagnosed with epilepsy at the age of 3, and then high-functioning autism 13 years later. Her blog discusses how both of these diagnoses have impacted her life growing up.
Olivia was diagnosed with epilepsy aged 11, and experiences uncontrolled seizures. She shares the challenges she has faced and her top tips in her blog.
Read Annie's personal journey of prioritising her mental and physical wellbeing while living with epilepsy, offering insights and advice for others.
Read Lucy’s real-life story about managing her epilepsy treatment, her brain surgery and sharing her challenges and triumphs along the way.
Seven-year-old Max shares his epilepsy story and tells us why he and his family are taking on a challenge for Purple Day.
Young Epilepsy have released their 10th annual research report.
As preparations for National Epilepsy Week continue to build, Young Epilepsy have announced the launch of a brand new online guide for schools, which will help teachers to better support young people with epilepsy in their care.
Andrew discusses his diagnosis of epilepsy, his experience in education and employment.
The unique research collaboration aims to improve epilepsy treatment for young people by addressing the causes, prevention and clinical management of childhood epilepsies.
People who have both autism and epilepsy face some of the starkest inequalities in the world. We know that worldwide approximately 8.4 million people have both conditions. On average, they have poor quality of life, poor health and die early. Research into the relationships and interactions of the these conditions is vital to early diagnosis, early intervention and ultimately, improving lives.
