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A parent shares a heartfelt and honest look at life after getting a tough diagnosis for a child. It talks about the initial shock and the journey to finding a new normal. It highlights the importance of building a supportive community, adjusting to new routines, and trusting medical professionals. Discover the emotional ups and downs of getting unsolicited advice and comparisons from others.
Featured
Receiving a diagnosis of epilepsy can come as a shock, leaving families feeling frightened, lonely and overwhelmed. Children and young people need help and support understanding their new diagnosis and how it will impact their lives. Help provide the support children need when they need it most.
Read Annie's story about how epilepsy nurses have supported her journey, highlighting their vital role in managing her condition.
Olivia was diagnosed with epilepsy aged 11. The diagnosis was a challenge for her and her family, which was worsened by her expereince of tonic clonic seizures a few years later. Olivia's blog talks about how her epilepsy affected her family relationships.
Young Epilepsy Rep, Annie discusses sharing her epilepsy experience with her parents.
Explore Olivia's personal journey with epilepsy, focusing on her strategies for maintaining wellbeing and managing the challenges she faces.
Olivia explains how her epilepsy and seizures affect her social life, going out with friends and what her top tips are to look after yourself, and still have a good time!
Read how Lauren navigates social life with epilepsy, sharing her experiences, challenges, and tips for staying connected while managing her condition.
Annie is a key member of our Youth Voice Network. In her blog, she discusses her experience with education and her exam top tips.
Olivia writes about her experience with epilepsy at school and university.
Anoushka's blog shares how life has been at school and college, with epilepsy. Anoushka's top tips might also give you some pointers to help at school!
This year’s theme was ‘More Than Seizures’ and we know that epilepsy is more than just a seizure, it can affect young people in so many other ways, so we joined with other epilepsy charities across the UK to raise awareness of these challenges.
