News and blogs

Survey – Young people’s experiences of epilepsy care

We’re asking young people to tell us how their experience of epilepsy care has changed as they’ve gotten older. The survey will help us understand what information or support young people might like to receive, as well as how healthcare for young people with epilepsy can be improved.

National epilepsy report features St Piers pupil

Young Epilepsy is really pleased that Jake, one of our students from St Piers School, is featured on the front cover of the recent Epilepsy12 report (published by the Royal College of Paediatrics and Child Health). The report charts children's first year of epilepsy care across the country, as well as the epilepsy services provided in different areas. Young Epilepsy works closely with RCPCH, as part of the Epilepsy12 project board.

Children missing out on vital epilepsy care - new report finds

A new report charting children’s first year of epilepsy care shows families facing delays and barriers to diagnosis and treatment. The latest Epilepsy12 report from the Royal College of Paediatrics and Child Health (RCPCH) highlights the experiences of children across England and Wales in 2018-19.