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Receiving a diagnosis of epilepsy can come as a shock, leaving families feeling frightened, lonely and overwhelmed. Children and young people need help and support understanding their new diagnosis and how it will impact their lives. Help provide the support children need when they need it most.
Featured
A parent shares a heartfelt and honest look at life after getting a tough diagnosis for a child. It talks about the initial shock and the journey to finding a new normal. It highlights the importance of building a supportive community, adjusting to new routines, and trusting medical professionals. Discover the emotional ups and downs of getting unsolicited advice and comparisons from others.
More seizures, more stress and appointments being cancelled are among the challenges faced by young people with epilepsy during the pandemic, Young Epilepsy has found.
Read how Emily overcame epilepsy challenges to achieve her career goals, offering inspiration and advice for young people with epilepsy.
Read Jo's inspiring journey of managing epilepsy while pursuing and achieving her career goals, with advice for others in similar situations.
Applications opened last week for the first-ever Epilepsy Research UK Young Epilepsy Fellowship Award. This unique and potentially life-saving collaboration aims to improve epilepsy treatment for young people by addressing the causes, diagnosis and clinical management of childhood epilepsies.
One in ten (11%) women who are currently taking the epilepsy medicine valproate are unaware of the possible risk of birth defects if taken in pregnancy. Furthermore, one in five (18%) don’t know that, when taken in pregnancy, the medicine could also cause learning and developmental delays in children. These worrying figures come from a newly published survey by the charities Young Epilepsy, Epilepsy Action and Epilepsy Society.
Young Epilepsy and Epilepsy Research UK are delighted to announce the launch of our first joint venture - a £300,000 Fellowship Award for research into childhood epilepsy.
Read inspiring real-life stories of what it's like to be a nurse while managing epilepsy, sharing challenges and achievements.
Explore how Lauren navigates the world of acting, overcoming challenges and pursuing her passion in the performing arts, whilst managing her epilepsy.
Lauren has absence seizures. In her blog she writes about living with epilepsy at school, how she made friends and told her teachers.
Explore how grandparents cope with and support their grandchild’s epilepsy, sharing insights and experiences in this real-life story.
