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Receiving a diagnosis of epilepsy can come as a shock, leaving families feeling frightened, lonely and overwhelmed. Children and young people need help and support understanding their new diagnosis and how it will impact their lives. Help provide the support children need when they need it most.
Featured
A parent shares a heartfelt and honest look at life after getting a tough diagnosis for a child. It talks about the initial shock and the journey to finding a new normal. It highlights the importance of building a supportive community, adjusting to new routines, and trusting medical professionals. Discover the emotional ups and downs of getting unsolicited advice and comparisons from others.
Young Epilepsy is really pleased that Jake, one of our students from St Piers School, is featured on the front cover of the recent Epilepsy12 report (published by the Royal College of Paediatrics and Child Health). The report charts children's first year of epilepsy care across the country, as well as the epilepsy services provided in different areas. Young Epilepsy works closely with RCPCH, as part of the Epilepsy12 project board.
A new report charting children’s first year of epilepsy care shows families facing delays and barriers to diagnosis and treatment. The latest Epilepsy12 report from the Royal College of Paediatrics and Child Health (RCPCH) highlights the experiences of children across England and Wales in 2018-19.
Read about Ellie’s challenges in school due to epilepsy, highlighting her experiences and strategies for navigating education successfully.
Jasmine tells her story of moving away from home for the first time, whilst managing her epilepsy.
Annie talks to us about her epilepsy, what she experiences when she has a absence seizure, and how they have impacted her.
Read Millie’s inspiring journey through brain surgery to treat epilepsy, sharing her challenges, hopes, and the impact on her life.
Discover Louise's inspiring journey of overcoming epilepsy challenges to reach her career goals, with tips for managing epilepsy at work.
Read Ann's inspiring journey of overcoming epilepsy challenges to achieve her career goals, offering advice and motivation for others.
Discover Jess's story of overcoming epilepsy to pursue her career goals, with tips on managing epilepsy in the workplace.
Discover Annie's journey of navigating career challenges with epilepsy and her advice for young people pursuing their goals.
