Epilepsy12 Report
Discover the latest findings from the Royal College of Paediatrics and Child Health on improvements to care and support for young people with epilepsy.
News
Keep up with the latest news from Young Epilepsy and stay informed about stories, campaigns, and changes that could impact you and your family.
Partners for Digital Health Innovation
Tiny Medical Apps and Young Epilepsy have partnered to revolutionise epilepsy care with innovative digital solutions. As part of the SBRI Healthcare Epilepsy Phase 2 project, this collaboration aims to empower young people with epilepsy, improve self-management, and enhance their quality of life. Supported by the Accelerated Access Collaborative (AAC) and the Health Innovation Network, this initiative marks a significant step towards implementing digital health innovations within the NHS.
New report shows uneven advances in children’s epilepsy care
The latest figures from the Royal College of Paediatrics and Child Health (RCPCH) show that some areas of epilepsy care for children are improving, but access to services still varies greatly.
New topiramate safety measures and pregnancy
Topiramate, also known by the brand name Topamax, is an anti-seizure medication. Doctors should no longer prescribe topiramate to treat epilepsy during pregnancy unless there is no suitable alternative treatment. Girls and women whose periods have started will need to take steps to avoid pregnancy if they take topiramate.
The Power of Research – Joint Research Reception
The Power of Research – Joint Research Reception
Mental Health Intervention in Childhood Epilepsy (MICE)
Evidence for a new psychological treatment for children with epilepsy has been published in The Lancet.
NICE Epilepsy Standard Adds Mental Wellbeing and Learning Impact
Young Epilepsy has welcomed a new quality standard for epilepsy care that say children and young people should be asked about their mental wellbeing and learning at their epilepsy appointments.
New valproate measures to begin in January 2024
The medicines regulator has asked healthcare organisations to plan for new measures related to the anti-seizure medication valproate. These changes will start to be rolled out from January 2024.
Epilepsy12 report on children’s epilepsy care
The latest figures from the Royal College of Paediatrics and Child Health (RCPCH) show that epilepsy care for children is improving, but access to services still varies greatly.
SUDEP Action and Young Epilepsy Launch Epilepsy Risk Checklist
SUDEP Action and Cornwall Partnership NHS Foundation Trust are collaborating with Young Epilepsy to create a paediatric version of the SUDEP and Seizure Safety Checklist. The award-winning Checklist, which launched in 2015, supports health professionals in discussing epilepsy mortality risks and SUDEP (Sudden Unexpected Death in Epilepsy) with their patients (aged 16+).