Diagnosing epilepsy

This section covers the referral and assessment process for children, young people and adults, and the test options currently available.

There is no single test for diagnosing epilepsy and getting a diagnosis can take time.

Instead, doctors rely on a range of medical tests, medical histories, eyewitness accounts, video evidence and records of seizures.

It can be a long and frustrating process for families, so it is important to keep accurate records of any seizures, noting down when they occur, how long they last and a full description of what happened, including any changes in behaviour before the seizure. This will help the child’s medical team to understand the full picture.

It also includes information to help parents, carers and young people give epilepsy experts the full picture to help them make a proper assessment and diagnosis.

Young boy having EEG

Last updated December 2023.

We’re currently reviewing this information. The next update will be 2025. If you would like to find out more about how we produce our information, or the sources of evidence we use, please contact us at healthinfo@youngepilepsy.org.uk

Find out about diagnosing epilepsy

Referral and assessment

Get information on referral and assessment for diagnosis after a first suspected epileptic seizure with Young Epilepsy.

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Causes of epilepsy

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Learn about common childhood and rare infancy epilepsy syndromes in this informative guide from Young Epilepsy.

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Epileptic seizures

Understand epileptic seizures, their types, causes, and management. Find resources and support for living with epilepsy.

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Treatments for epilepsy

Explore various epilepsy treatments, including medication, surgery, and dietary options. Find resources and support for managing epilepsy effectively.

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Common co-occurring conditions

Explore common co-occurring conditions with epilepsy, including autism, ADHD, and DCD (dyspraxia), and how they impact children with epilepsy.