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Your voice matters: Send your message to government
Speak up for children with epilepsy. Send a message to the government to ensure better support in schools for children with epilepsy.
Featured
Speak up for children with epilepsy. Send a message to the government to ensure better support in schools for children with epilepsy.
Featured
We are thrilled to announce that former professional footballer, Jay Bothroyd, has joined us as an official Young Epilepsy ambassador.
The Power of research – Joint Research Reception
Sign our petition today to ensure every child with epilepsy has an Individual Healthcare Plan in school.
Evidence for a new psychological treatment for children with epilepsy has been published in The Lancet.
Jane Ramsey, Young Epilepsy Chair of Trustees, is to have a peerage conferred by His Majesty The King.
New safety measures are now in place to reduce the risk of harms from the anti-seizure medicine valproate
The UK is experiencing shortages in certain medications, many of which are prescribed for epilepsy. If you are worried about your supply of anti-seizure medications or are having difficulty getting hold of certain prescribed medications speak to your epilepsy team for more advice. Do not stop taking your medication or reduce dosage. Always speak to your doctor before making any changes to your meds.
The Medicines and Healthcare products Regulatory Agency (MHRA) has recently updated their advice for all males taking valproate. Learn more about the new guidance.
Young Epilepsy has welcomed a new quality standard for epilepsy care that say children and young people should be asked about their mental wellbeing and learning at their epilepsy appointments.
Ahead of tonight’s BBC Panorama programme investigating UCKG, Young Epilepsy is calling for a greater understanding and awareness of epilepsy across society, including faith communities.
The medicines regulator has asked healthcare organisations to plan for new measures related to the anti-seizure medication valproate. These changes will start to be rolled out from January 2024.