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Your voice matters: Send your message to government
Speak up for children with epilepsy. Send a message to the government to ensure better support in schools for children with epilepsy.
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Featured
Jay Bothroyd Joins Young Epilepsy as Ambassador
We are thrilled to announce that former professional footballer, Jay Bothroyd, has joined us as an official Young Epilepsy ambassador.
Welcome to our New Chair of Trustees
Young Epilepsy welcomes Markus Hardy Ruetimann as the new Chair of Trustees, bringing extensive experience to support children and young people with epilepsy.
Young Epilepsy wins the Best Engagement Approach Award at the Menopause Friendly Employer Awards
Young Epilepsy has won the Best Engagement Approach Award at the industry-recognised 2024 Menopause Friendly Employer Awards.
Young people deliver our petition to government
Today young people are delivering our #UnderstandMyEpilepsy petition to education ministers in England, Scotland, Wales and Northern Ireland. The petition was signed by 16,163 people across the UK and is calling for children with epilepsy to be safe and included at school.
New advice for males on valproate
Updated guidance on valproate use for males, including advice on contraception, family planning, and associated risks. Learn more about managing valproate safely.
New Mental Health Intervention Trial
New mental health intervention is being trialled in Southwest England specifically designed to support children and young people living with epilepsy.
New report shows uneven advances in children’s epilepsy care
The latest figures from the Royal College of Paediatrics and Child Health (RCPCH) show that some areas of epilepsy care for children are improving, but access to services still varies greatly.
New topiramate safety measures and pregnancy
Topiramate, also known by the brand name Topamax, is an anti-seizure medication. Doctors should no longer prescribe topiramate to treat epilepsy during pregnancy unless there is no suitable alternative treatment. Girls and women whose periods have started will need to take steps to avoid pregnancy if they take topiramate.
More than 16,000 of you joined us to make a stand
The overwhelming response to our recent petition calling for governments to ensure every child with epilepsy has a current Independent Healthcare Plan (IHP) in school has shown just how critical this issue is.