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Paediatric Epilepsy Research and Impact Report 2025
Young Epilepsy leads world-class childhood epilepsy research, delivering early diagnosis, precision treatments and better support for children and families.
Policies & reports
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What I Need In School WINS 2023
Children with epilepsy are at a greater risk of learning and behavioural difficulties than children without epilepsy. Despite this, there is a lack of research exploring the views and experiences of young people with epilepsy, their parents and school staff with regards to educational supports that could aid learning in children with the condition.
Valproate survey 2020
Between October 2019 and January 2020, Epilepsy Action worked with Epilepsy Society and Young Epilepsy to conduct another survey of women who have taken or who are taking valproate, since the introduction of the Pregnancy Prevention Programme (PPP)
Epilepsy support at school survey 2019
Young Epilepsy survey of young people with epilepsy and their parents and carers to find out whether schools are providing support that complies with Government standards.
Research Report 2022
Young Epilepsy coordinates and funds research into the causes, treatments and impact of all aspects of childhood epilepsy. We want to secure the best outcome for everyone affected by the childhood epilepsies and we know the best way to do this is through research.
Research Report 2021
Young Epilepsy coordinates and funds research into the causes, treatments and impact of all aspects of childhood epilepsy. We want to secure the best outcome for everyone affected by the childhood epilepsies and we know the best way to do this is through research.
Young people’s experiences of epilepsy and mental wellbeing 2021
We surveyed young people with epilepsy (aged 25 and under) about how living with epilepsy has affected their mental wellbeing (their thoughts, feelings and how they are able to cope with everyday life).
Inclusion and participation of children with epilepsy in schools
An in-depth study to gain an understanding of the views of children with epilepsy, their parents and staff regarding inclusion and participation of children with epilepsy in school.
Autism and Epilepsy: Laying out the evidence (Snapshot)
People who are autistic and have epilepsy face some of the starkest inequalities in the world. We know that worldwide approximately 8.4 million people have both conditions. On average, they have poorer quality of life, poor health and can die early. We’ve known this for years, but a lack of evidence-based strategic action has blocked progress.
Autism and Epilepsy: Laying out the evidence
People who are autistic and have epilepsy face some of the starkest inequalities in the world. We know that worldwide approximately 8.4 million people have both conditions. On average, they have poorer quality of life, poor health and can die early. We’ve known this for years, but a lack of evidence-based strategic action has blocked progress.
Epilepsy in schools
This report seeks to gain an understanding of the views of young people with epilepsy, their parents and school staff regarding educational and therapeutic provision, understanding of epilepsy and seizure management in schools.
Young people's experiences of epilepsy care survey 2021
Young Epilepsy surveyed young people with epilepsy (aged 11 to 25) about their experience of epilepsy care and how this has changed as they have grown older and transitioned to adult services.