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A young woman poses for the Young Epilepsy campaign for #UnderstandMyEpilepsy

Children with epilepsy aren't getting the support they need

Understand their epilepsy and support them to be safe and included so that they can reach their potential.

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How can we help?

How can we help?

I have epilepsy

If you have epilepsy or you've recently been diagnosed, you might be feeling upset, angry or depressed. We have lots of information to support you whilst you adjust.

How can we help?

I am a supporter

Every single donation - no matter how big or small - helps us to support more children and young people with epilepsy.­­­­­­­

How can we help?

I am a parent

Whether you have a child who has been recently diagnosed or if you have a school-aged child with epilepsy, there are many challenges that parents and carers can face.

Young boy smiling confident using smartphone at park
Featured story

My Epilepsy

Join us to test the new My Epilepsy digital tool, a platform where you can manage and share your epilepsy health data securely.

Help shape the future of epilepsy care.

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Latest Updates

See our latest news and blogs


            Latest Updates

More than 16,000 of you joined us to make a stand

The overwhelming response to our recent petition calling for governments to ensure every child with epilepsy has an Individual Healthcare Plan (IHP) in school has shown just how critical this issue is.


            Latest Updates

I am Jasmine

My epilepsy means I have tonic-clonic seizures. They’re big ones. I fall to the floor and shake. They're over five minutes long. And yeah, I have minimal control, so I have prolonged seizures.


            Latest Updates

I am Cash

I am Cash. I'm 10 years old. My epilepsy means I have focal seizures. My legs go funny, and I also get this weird taste in my mouth. I usually get really hot and then sweat a lot.

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We're hiring

Help us push the boundaries to ensure the voices of children and young people with epilepsy are heard, their voices respected and their ambitions realised.

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