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Launch day: sign our petition!
Sign our petition today to ensure every child with epilepsy has an Individual Healthcare Plan in school.
News and blogs
Featured
Young Epilepsy and Jay Bothroyd's Premier Football Experience
Inspired by the story of Cash, who faced exclusion from a football camp due to his epilepsy, former premiership footballer, Jay Bothroyd, joined us for a day of football skills and coaching at a fun football session in the Easter holidays.
Children write to Prime Minister on siblings' access to cannabis-based seizure treatments
Nine-year-old Thomas Braun delivers a letter to the Prime Minister about his families’ challenges in accessing cannabis-based seizure treatments for his brother.
Young people's views on epilepsy care
Today we’re publishing the results of our young people’s survey, all about their experience of epilepsy care and how this has changed as they’ve grown older.
Epilepsy medication risks in pregnancy reviewed
A review of anti-seizure medication (ASM) use in pregnancy has been published, showing that some ASMs are safer to use than others.
Jack's Story - Our 2020 Christmas Appeal
Help make the night before Christmas magical for all children.
Survey – Young people’s experiences of epilepsy care
We’re asking young people to tell us how their experience of epilepsy care has changed as they’ve gotten older. The survey will help us understand what information or support young people might like to receive, as well as how healthcare for young people with epilepsy can be improved.
National epilepsy report features St Piers pupil
Young Epilepsy is really pleased that Jake, one of our students from St Piers School, is featured on the front cover of the recent Epilepsy12 report (published by the Royal College of Paediatrics and Child Health). The report charts children's first year of epilepsy care across the country, as well as the epilepsy services provided in different areas. Young Epilepsy works closely with RCPCH, as part of the Epilepsy12 project board.
Children missing out on vital epilepsy care - new report finds
A new report charting children’s first year of epilepsy care shows families facing delays and barriers to diagnosis and treatment. The latest Epilepsy12 report from the Royal College of Paediatrics and Child Health (RCPCH) highlights the experiences of children across England and Wales in 2018-19.
Increase in epilepsy seizures in young people during lockdown
More seizures, more stress and appointments being cancelled are among the challenges faced by young people with epilepsy during the pandemic, Young Epilepsy has found.
Women still unaware of risks of valproate use in pregnancy - Charity survey finds
One in ten (11%) women who are currently taking the epilepsy medicine valproate are unaware of the possible risk of birth defects if taken in pregnancy. Furthermore, one in five (18%) don’t know that, when taken in pregnancy, the medicine could also cause learning and developmental delays in children. These worrying figures come from a newly published survey by the charities Young Epilepsy, Epilepsy Action and Epilepsy Society.
Young Epilepsy & Epilepsy Research UK: Fellowship Award!
Young Epilepsy and Epilepsy Research UK are delighted to announce the launch of our first joint venture - a £300,000 Fellowship Award for research into childhood epilepsy.