Policies & reports

Young Epilepsy coordinates and funds research into the causes, treatments and impact of all aspects of childhood epilepsy. We want to secure the best outcome for everyone affected by the childhood epilepsies and we know the best way to do this is through research.

• Research and policy reports
• Physical activity
• Healthcare

We surveyed young people with epilepsy (aged 25 and under) about how living with epilepsy has affected their mental wellbeing (their thoughts, feelings and how they are able to cope with everyday life).

• Research and policy reports
• Physical activity

An in-depth study to gain an understanding of the views of children with epilepsy, their parents and staff regarding inclusion and participation of children with epilepsy in school.

• Research and policy reports
• Education

People who are autistic and have epilepsy face some of the starkest inequalities in the world. We know that worldwide approximately 8.4 million people have both conditions. On average, they have poorer quality of life, poor health and can die early. We’ve known this for years, but a lack of evidence-based strategic action has blocked progress.

• Research and policy reports
• Physical activity

People who are autistic and have epilepsy face some of the starkest inequalities in the world. We know that worldwide approximately 8.4 million people have both conditions. On average, they have poorer quality of life, poor health and can die early. We’ve known this for years, but a lack of evidence-based strategic action has blocked progress.

• Research and policy reports
• Physical activity

This report seeks to gain an understanding of the views of young people with epilepsy, their parents and school staff regarding educational and therapeutic provision, understanding of epilepsy and seizure management in schools

• Research and policy reports
• Education
• Physical activity

Our purpose at Young Epilepsy is to help create a society in which children and young people living with epilepsy can thrive and fulfil their potential, have their voices listened to and respected, and their ambitions realised.

• Research and policy reports
• Annual report

Young Epilepsy surveyed young people with epilepsy (aged 11 to 25) about their experience of epilepsy care and how this has changed as they have grown older and transitioned to adult services.

• Research and policy reports
• Healthcare

This document outlines the new, ongoing, and completed projects during July 2020 to June 2021.

• Research and policy reports
• Physical activity
• Healthcare

An online survey was used to explore the perceived impact of COVID-19 and associated restrictions on young people with epilepsy in the UK

• Research and policy reports
• Physical activity
• Mental health and wellbeing