The Daily Mail has run a story about the parents of 22-month old Evelyn Kealy, who are speaking about their daughter’s very rare form of epilepsy, West syndrome. This is a serious form of epilepsy in infants.
Having been diagnosed with a rare form of brain malfunction which can occur at any time during childhood, 14 year old James Callan underwent brain surgery and extensive rehabilitation at Young Epilepsy. His mum Karen shares their story in today’s Daily Express, helping to raise awareness of the condition.
The Government has announced amendments to the Children and Families Bill so that all schools, including free schools and academies, will be required by law to make appropriate arrangements for supporting pupils with long-term health needs such as epilepsy. This news has been welcomed by Young Epilepsy but there are still gaps in support for children with the condition.